Find the full transcript here.
10:05 pm ReeveFdnIS: @Fem2pt0 Setting priorities is a big issue, finding time for yourself #fem2
10:06 pm ReeveFdnIS: If you do not find a balance, it is so easy for life to feel overwhelming #fem2
10:07 pm moneyinmiddle: Long distance caregiving is very hard — guilt when you’re not there, #fem2
10:07 pm schrbchr: It is difficult to be in the sandwich generation. I care for my mother, who is 75, as well as my 8 and 5 year-old children. #fem2
10:08 pm IndianaTrish: Also guilt when you’re there and wish you didn’t have to be a caregiver #fem2
10:08 pm Caregiving: Managing family dynamics is also tricky–not everyone may be on the same page. Dealing with the conflict can zap you of your energy. #fem2
10:10 pm schrbchr: @ReeveFdnIS. There is mourning of who the person used to be and how you may have interacted. I miss shopping with my mom. #fem2
10:11 pm christytj: Why is the expectation that the woman, esp if single, simply "will be" the caregiver? #fem2
10:11 pm jbinsky: as a friend of a caregiver, it’s hard to know when to listen to "venting" and not chime in #fem2
10:12 pm tempest1970: Can you plan for the inevitable with aging parents? What first — financial, physical, comes first? Can you really prepare? #fem2
10:14 pm JudyLubin: A guy friend said to me the other day, the major predictor if parent goes in nursing home is if they had a daughter. #fem2
10:20 pm IndianaTrish: Finances play a huge role when it comes to the care you can provide especially for the chronically ill or disabled #fem2
10:21 pm jbinsky: Other ways friends/family can help lighten the caregivers load: make dinner, do laundry, help clean, yard work #fem2
10:21 pm christytj: @gingerlatte Support as caregiver is what it’s all about. I couldn’t hv made it without family/friends & ultimately Hospice care #fem2
10:23 pm MarthaStett: I see family caregiving as a feminist issue–mostly women do daily care of children and elderly relatives, either unpaid or under-paid.#fem2
10:23 pm JakeAryehMarcus: @tempest1970 FMLA also is time limited and unpaid even if you are eligible. #fem2
10:25 pm mgyerman: Place to start is public reevaluation of what constitutes "work." Then push application of tax credits to those working in the home. #fem2
10:25 pm ReeveFdnIS: @samsanator I believe it is a healthcare issue #fem2
10:26 pm MarthaStett: It can be a sense of "too muchness" in our lives–caregiving draining our own health, family lives, and finances. (Sandwich generation)#fem2
10:26 pm gingerlatte: Finding quality childcare is often the job of the woman which can add to burden #fem2 Not sure how I will deal with that when it comes #fem2
10:26 pm NFCAcaregivers: Make a list of things to make your life easier and keep it with you at ALL times. When someone asks how they can help use the list #fem2
10:28 pm christytj: Do as much research ahead if possible. Financial support resources harder to come by than may be expected. Medicare has big gaps. #fem2
10:29 pm sairy: @fem2pt0 any kind of caregiving requires schedule flexibility – if only for doctor visits, treatments & the like. #fem2
10:29 pm NFCAcaregivers: Another tip – speak up for yourselves and your loved ones. We don’t speak up enough. if there is a problem tell someone about it #fem2
10:29 pm IndianaTrish: @christytj Medicare has gaps especially when it comes to homecare #fem2
10:29 pm GloPan: Part of the caretaking problem is that men have not been taught to be caretakers. They are more willing now but don’t know how. #fem2
10:30 pm MarthaStett: Family caregivers at home need enough trained, well-paid help so the hours the family member works are reasonable. #fem2
10:32 pm ReeveFdnIS: For many women, there role of spouse becomes one of caregiving after disability #fem2
10:38 pm MarthaStett: I agree that women feel the burden of under-financed long-term care. It’s our burnout vs. guilt about nursing home placement.#fem2
10:38 pm jdp23: from my experience as a guy, i have the expectation that i should have a role in caregiving, but rarely think about it in practice #fem2
10:40 pm NFCAcaregivers: We should all be speaking up to our senators and reps as they are voting on health reform now which can help us. #fem2
10:41 pm IndianaTrish: @christytj Poor care, poor quality of life, you are left to the system which is weak at best #fem2
10:41 pm NFCAcaregivers: there should not be time in a family caregiver’s life for guilt. It is wasted energy with everything else we are doing #fem2
10:42 pm ReeveFdnIS: @christytj Generally it becomes LTC nursing home. To get that many family looses all their resources #fem2
10:42 pm MrsBamBam: #fem2 I’m most concerned abt losin my identity.its almost assumed that wife gives trades in car for a mini-van and quits her career 2 b mom.
10:42 pm Fem2pt0: RT @NFCAcaregivers: there should not be time in a caregivers life for guilt. It is
10:43 pm JudyLubin: Study: Caregiving early in life raises women?s poverty risk- stopping work, decline in health effects women?s economic wellbeing #fem2
10:43 pm ReeveFdnIS: As medicare cuts back, private health care follows. Most policies allow for LTC but only 30-90 visits a year for home care–inadequate #fem2
10:44 pm JakeAryehMarcus: @jdp23 Unless caretaking is your career, everyone learns on the job. Didn’t learn to change diapers in law school. #fem2
10:44 pm MarthaStett: Congress: We need affordable care for people with dementia and other long-term conditions, at home or in small, home-like facilities. #fem2
10:45 pm mgyerman: Teach the new generation about empathy and caregiving, regardless of their gender. #fem2
10:47 pm mgyerman: Part of the problem with our culture is we devalue those who are too young, too old, sick or infirm. It makes us uncomfortable. #fem2
10:52 pm MarthaStett: Caring for parents is a complicated mix of love and duty and guilt and compassion and tedium and pure exhaustion. Often invisible work.#fem2
10:54 pm ReeveFdnIS: Find your strength in creative ways online communities email exchanges postcards, prayer lists anything that helps you feel connected #fem2
10:54 pm MarthaStett: We also devalue women, still, and the work we do for others, worth more in dollars–400 billion a year, I think–than Medicaid pays.#fem2
10:55 pm jdp23: @JakeAryehMarcus great point. it’s easy to fall into patterns where everybody relies on one person to do it all #fem2
10:55 pm NFCAcaregivers: Isn’t that the truth about so much of what we do – it is always much more than we planned for. #fem2
10:55 pm hikingprincess2: caring for parents as a single woman is all of that however you have to think about yourself as well… #fem2
10:57 pm MrsBamBam: @Gingerlatte #fem2 hard bc MBA is done-and career was set,but now I’m moving into (marriage and baby) phase of life,and dnt wanna get back
10:57 pm SweetyCBS: @fem2pt0 FMLA does not "provide" for anyone. If your comp has more than 50 emps they hold your job for a time period. #fem2
10:58 pm ReeveFdnIS: Remember you always have your voice, when you go silent, you get lost in the crowd and forgotten #fem2
10:58 pm MrsBamBam: @Gingerlatte #fem2 ..rat race of corporate world-bc I don’t want to b away fr my husband and baby. Can’t afford the long hrs and on call!
10:58 pm GloPan: RT @joyfulkira: RT @christytj Do research. Financial support resources harder than
11:00 pm JakeAryehMarcus: @Fem2pt0 Gotta go do some caretaking.
Thanx for #fem2 Twittercast.
11:00 pm ReeveFdnIS: Knowledge is power. Find orgs that support your needs and interests, join advocacy grps, learn as much as you can #fem2
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